As the mother of two chronically ill children, I have long faced high health care costs. My sons suffer from a rare bone-marrow failure syndrome called Shwachman-Diamond syndrome and have secondary mitochondrial disease that requires treatment with a broad range of expensive medications. We averaged $10,000 to $12,000 a year in billed out-of-pocket medical expenses before Obamacare became law. In 2013, we incurred just over $27,000 in out-of-pocket medical expenses. President Obama’s signature piece of legislation has more than doubled our yearly medical costs.